Avery is having a good day today : ) Some good news to share:
- She gained another ounce. So now she is up to 1 pound 6 ounces!
- She started "feeding" again today through her feeding tube. It's been a full 24 hours and so far the results are good. She didn't spit up any of the food and she made a nice poop this morning. Both are good signs that she is digesting well. Hopefully tomorrow they will be able to up her feeding amounts and that will help her gain more weight more quickly.
- They are still slowly weaning her off of her ventilator. It's been a slow process, but she is doing well with it. As she gains more weight it will be easier for them to wean her.
A lot of people have been asking about "kangarooing" and how it went. Unfortunately, I wasn't able to do it yet. The day that we were going to try was the day that she had to have her ventilator tube changed and the nurses and doctors felt it was too much to do in one day. The doctor is also reccomending that we wait until she is off the ventilator to start kangarooing. I was disappointed, but I agree with them and I understand. Our time to snuggle will come soon enough. I'm really looking forward to it and when the time comes I will certainly update all of you on how it went.
Thank you to everyone who signed up to be part of Team BrAvery as we raise money and walk for March of Dimes in honor of Brielle and Avery. There is so much love and support out there for me and my girls that it makes me cry every time I think about it. I have the best family and friends that a girl could ask for and I don't know how I would've made it through the most difficult time in my life without them. Something else happened today that made me question certain people and their values and priorities during this scary time in our lives. I can't help but be totally consumed by my daughter and her condition and it makes me wonder how other people so close to her can be concerned with silly and un-important issues. My daughters are the most important things in my life right now and I wish it was that way for everyone, but unfortunately for them it isn't...
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